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European Registry of Familial CAKUT Cases

About EURECA

The EURECA Registry is dedicated to a systematic collection of data in a multinational approach. It is a web-based platform supporting a standardized entry of clinical and family data.

Financial support was received from the European Society for Paediatric Nephrology (ESPN). The registry is organized by the ESPN Working Group CAKUT/UTI/Bladder Dysfunction.

All users will be asked to register in advance and patient IDs will be distributed automatically.

Informed consent has to be obtained from all index individuals and their family members.
Informed consent documents can be downloaded here.

On a voluntary basis, blood or DNA samples of index individuals and their relatives are centrally collected for systematic genetic testing. For this, 2-3 ml EDTA-blood samples can be taken and shipped at room temperature to the EURECA Headquarter in Munich (see shipping address).

If you have any questions, please do not hesitate to contact the EURECA Team by clicking here.