How to use EURECA

How to use the EURECA webpage

If you would like to include your patient's data in EURECA, please register. We will send you a username and password as soon as possible.

Once you have registered please make sure that a positive votum of the corresponding ethics committee has been obtained and that your patient has received, understood and signed the patient information and informed consent form.

Within the password-restricted area you will be able to create new patients for your center. Please make sure that you have the informed consent of your patient at hand. You will have to indicate the date of informed consent.

You will always be able to review the data of all patients from your own center, but you will not have access to data from other centers.

Once you have created a novel patient, please fill in the “Patient Basic Informations / Initial Visit” forms first.
After filling in the mandatory data fields, the system will create an unique patient-id for your patient.
Please always use this pseudonym in any context of EURECA (e.g. for labeling of biosamples).

It is intended to follow every patient with at least one follow-up visit every two years. EURECA will calculate the time to the next scheduled visit and will indicate it in the “patients registry” for your center. You can however add a follow-up visit at any time.

Please provide us with as much and as detailed information as possible. The more we can learn about this disease, the better.

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Shipping address for biosamples

Prof. Dr. Julia Hoefele

Institute of Human Genetics
LMU Klinikum
Ludwig-Maximilians-Universität
Campus Innenstadt

Goethestraße 29
80336 Munich
Germany